Biren's Blog
NY Times covers Oncotalk
As an oncology fellow, I had the previledge of attending an NCI sponsored research conference on communication skills for oncology fellows titled: Oncotalk in Nov. 05. It was recently covered in the New York Times.
See link: NY Times article.
by: birensaraiya in: My entries
Modified on January 11, 2006 at 10:40 PM
on to oncology
it's been a while since I wrote on this blog. It's been a busy
month. After finishing the boards, I started my month of Oncology
service. my senior colleagues had told us that there is a very
steep learning curve, and they were right. It's amazing how much
I have learned in just one month. I know that this year will be
very busy, but my goal is to continue to chip away at the project
(prostate cancer review) during this year.
As part of my fellowship, I also am required to do research, and
what I want to do is: be involved in various research projects to learn
the basics of the reseach, and bring that to the group here.
I think many people have visited and joined the group in the last
month, as always, I encourage everyone to put in their views out in the
open, don't be shy. I understand that many people may be hesitant
and think "what will others think of me," <I know i did, it took me
some time before coming up with the concrete idea and running with
it>. But as I have learned, when I floated the idea around, I
did "meet" all of you who have similar interests.
Please keep an eye out on our SAHRI Journal for new projects and ongoing projects.
Again, share your expertise and knowledge.
Biren
Off till Aug 24th
My Internal Medicine boards are in three weeks, and I
am going to take some time off and study for them. You can still
reach me via email, but I think the number of posts from will (I hope)
decrease substantially.
Biren
Interacting with other organizations
I ran into Dr. Rajaram, a Pulm/CC attending at RWJ and Princeton. Someone I had known from my residency. She and her husband, Dr. Kandasamy are affiliated with International Medical Health Organization, a humanitarian charity. I didn't get time to tell her much about SAHRI and the interactions we might have because of time, but I thought about it as I was going thruogh their website. And these thought apply to many other organizations that exist which are focused mainly on humanitarian aid.
Few observations (again, many organizations like this one exist).
1. Many of the members have health care background (physicians, nurses etc.)
2. All of them have the drive to do help others in need
3. Most help by giving their time and monies.
So, what is the interaction with SAHRI:
- SAHRI focuses on long term issues: changing health care and health management by encouraging relevant medical research...
- These organizations can be the community arms that help us translate the research
- these organizations can help us with the research in health behavior (one of the feedbacks I received is that it is hard to get south asians to participate in research projects).
- many of the organizations' volunteers have the medical background and expertise that can be leveraged to improve the research (recruiting patients, developing research questions, gaining better understanding of disease processes obtained from the experts in the community).
- collaborate with other similar organizations and improve their funding, obtain efficiencies in operations, better delivery of care
These are just the few reasons why organizations need to come together and all can benefit.
Biren
Is it all talk?
This is continuation of my conversation with Alpesh, See altruism and changing behavior for previous discussion.
One of the other comments Alpesh made was (and again, I thank him for
his insight), "at some point in time [you] have to stop talking and
start actually doing the work." I think it is a VERY good point
and goes back to the thoughts on the importance of having small
successes initially to attract more resources to our cause. I
have been focused on making contacts with those resources that I think will
be helpful, at the same time, working on issues thworking at are close to my
own research interest - cancer screening. I am doing that by
using the wiki database - prostate cancer.
But as I do the review, I realized that while wiki is a good input
format, we will need better output format --- output is still an
issue,
especially for the purposes of reseach and we stilll need help find additional resources.
So, I go back to making contacts and finding resources. It is a tough balancing act.
Underlying all of this is the belief that we need to utilize the
power of numbers - find those who believe in this concept and
issues. Which will also expand the work we do and how fast
we do it. As you recall, when SAHRI started, it was going to be a local project at my
residency, but then I got wise and thought of the global need and resources and how to utilize the power of
numbers.
Biren
by: birensaraiya in: My entries
Modified on July 14, 2005 at 8:05 PM
Altruism
This is continuation of my conversation with Alpesh Patel, MD MBA, a cardiology fellow. This is not on SAHRI blog because it reflects personal views. Please see SAHRI blog for thoughts on Changing Behavior.
One of the other points Alpesh made was: how do you get others to
contribute? Do you offer monetary compensation? Or is it
left to their "good will." It's a question that my friend Steve Shu
had raised very early on in our conversations about SAHRI. It is
also a frequently asked question by "realists." I respect the
question. I will confess --- I have a "naive" view of the
world. I think that there are people out there who want to do
good work (and many of them are in medicine, because it attracts those
types of people). So yes! I do want the initital work to be
done on "good will," "altruistic nature" or
whatever else you want to call it. But I am not that naive
either, I realize that you need funds--- I mean, I too have a day time
(full
time) job. And eventually when I feel comfortable (read: we have shown
to be a viable organization with one of two successes), we will go out
and do fundraising.
Will it work? I hope so. The way I look at it, if only 1% of the people I approach believe in what we want to do, we will be extremely successful (as Thomas Friedman cited someone from Microsoft in his book, "when you are one in million in china, you are one of 1500"). Obviously until we have gotten results and successes, it will be hard to convince masses to spend the energy and effort. Once we have had successes, money will flow (read: "if you built it, they will come"). I believe in people--- I reallly do. Once we show the world that we are worthy, the world will open up the wallets. Plus, I also believe in the combination of "altruism" with ingenuity and entrepreneural skills to make the organization financially stable.
So,
how do I see this working in the real world? Well, as we do
the research, we will have business opportunities based on our findings
(servicing the communities' needs will lend itself to
entrepreneurs). For example, it can be an information
management system that helps patients manage diseases and those
delivering medical care, may be even non-medical fields like
restarurant
business and athletic business can work to benefit from out
efforts. Those
individuals/entrepreneurs who work with us, will have an opportunity
to benefit from our "intelligent resources." Of course, there are
no formulas set--- who gets what, but Universities work in similar
fashion.
At least, that's the thought right now. Of course, comments are welcome and nothing is set in stone.
Biren
by: birensaraiya in: My entries
Modified on July 12, 2005 at 9:45 PM
Reshuffle- copy of "Biren's Blog"
This is one of the earlier entries that I have moved to my own blog.
Biren
Where do we go from here?
Here are a few thoughts on where we have to go. Please note that some of the ideas are from those people that I have talked to. I hope that we can use this as a jumping board and then go forward.Our first goal is to summarize the existing research.
We have divided into specific subjects.
1. CAD
2. Diabetes
3. Renal Diseases
4. HIV
5. COPD/Asthma
6. Cancer prevalence (prostate, breast, lung, oral)
But the question arises: while we do the review of the literature, can we answer any additional questions?
I
spoke to Dr. Jay Jayasankar at the recent South Asian American Health
Conference and he made a good point: He asked a question: Why should we
study the population? It's a good question because the South
Asian population in US is < 1%.... BUT the disease burden is great
and by studying the population with a high disease burden, we can get
faster, better results. So, those diseases (like
Coronary Artery Disease, Diabetes), where the incidence is presumably
high, we can and should focus on those first.
In any case, Others have asked a few specific questions. I wanted to share those with you today.
1. (Ajanta Sen) wanted to know the etiology of CHF? Systolic vs. Diastolic; Due to valvular disease, coroanry disease, congenital heart disease??? One idea would be to proceed by taking a look at various local cardiologists' office records and contact patients for their consents; then examine the charts for possible etiologies (EF, Echo for valvular history etc.). Thoughts?
2. (Chirag Trivedi) - there is limited evidence of having
inflammatory bowel disease in India, but when they migrate to the US,
the incidence is increased. Why?
- the key to the WHY may be the trigger/etiological factor for IBD.
- Chirag, how would you want to study this?
3. (Ashish Shah) Prevalence/Incidence of Prostate cancer
(presumably it is lower than African American, but I am not sure of the
evidence.
- review of literature may provide some information, otherwise a cross-sectional or a longitudinal study might give us a better answer.
4. (Biren) what is the mortality data and the cause of death in South Asians?
5. (Neha) What is the incidence of obesity in South Asians children?
What about you? what questions do you have? And how do we study them? Please share your thoughts.
Biren
Growing up
Today
is the last day of my residency. Tomorrow, when I go to work, I
will go as a "FELLOW." I have been reflecting on the past few
years. My wife, Neha, tells me that "when [she] first met me, I
was this little medical student." I think I know what she means . But I think she is right. I feel that I am growing everyday... both on a personal and a professional level.
Professionally, when I started residency, I knew I wanted to do
oncology (for many reasons... including the fact that death and dying
did not bother me). But I have learned and grown and I think I
know what I want better. I know what I want to do is: not just
take care of patients and families the best I can, but also teach the
principles of humanism and professionalism to the next generation of
physicians.
I have also learned a valuable lesson. Never stop learning.
Never think that you know enough. This applies not just to
medical knowledge but also personal growth. I have struggling
between being certain and uncertain.
Starting SAHRI has been a great experience in personal growth. I
am doing things that I never imagined. I never saw myself as a
"business" person... "doing meetings, lunches or dinners," or "making a
presentation," or figuring out how to get someone's attention in less
than a minute (like an elevator ride). I never thought that I
would ever be focusing on "research." [For those non-medical
personnel, most doctors usually classify themselves as either
"clinicians" - taking care of patients or "researchers"-doing bench
research or clinical research]. But I am doing all of that.
I am going to meet people, pitch the idea, getting feedback etc.
Things that an MBA or an entrepreneur would do.
Please don't get me wrong, I am not complaining, just amused as I
reflect on the past three years. I am constantly learning.
I am learning about the process, sharpening my presentation skills,
thinking about our vision how to make it happen. I am thinking
about how to finance the project, how to use technology to enable our
projects etc.
But I am enjoying... regardless of what happens. I hope that soon
we will contact the medical students and residents across the US to let
them know of our plans and ask them to join in our effort.
Biren
For Non medical professionals and collaborators
I
was at a party last weekend and there were a few professionals (mostly
IT, sales etc) there. While I was trying to tell them about what
we want to do... It occurred to me that I need to do a better job at
explaining what are our goals and why it is important at all. So,
I figured I should try again. (plus, every iteration of the explanation makes it better).
Why the need for SAHRI? See our goals
In
plain English. Medical doctors try to work by using the
guidelines produced based on "clinical evidence." The evidence
comes from studies. For example, much of what we know about
coronary disease in the US comes from a landmark study in Framingham,
MA. About 40 or so years ago, researchers did a thorough study of
the people of Framingham and followed them (and their descendants) for
years to understand what factors predicted heart disease, mortality
etc.
Someone
might argue, why the need for specific population study? Well, we
know from other studies that the South Asians have higher incidence of
diabetes at an earlier age. So, clearly there is some evidence
that the population is different (with different genetics and risk
factors). But that is only one aspect of one disease. Given
the fact that we are finding out more about genetics and genetic basis
of diseases... population based study will improve the health of the
population (about 1/5 to 1/6 of the world population).
So, How does research happen? As I said
before, you need smart people, with resources and interest. I
think we have smart people... I work with them everyday.
Resources... we can find them... interest... that is the key. We
have to develop a generation of researchers with interest
in South Asians. In general, every one in the field of medicine
is encouraged to develop research interest and perform research.
Medical students, residents and fellows... from personal experience as a
medical student and resident (and now a fellow starting July 1st), few
thoughts: research is time
consuming (rightfully so), and knowledge on how to perform good
studies is lacking.
So, we want to fill those gaps. We want to provide those interested with guidance and resources.
- a medical knowledge database will provide an up-to-date information on what research has been done, what is being done.
- a resource database will provide a list of key topic education, and hopefully personnel who will help them with their projects
- a list of ongoing projects that need help etc.
Why the need for IT?
- much of medical profession is still working on snail mail. We need to
leverage the technology to enable our organization to accomplish its
goals. We use wiki, blogging, and others that have yet to be developed.
- we need to bring the information to the doctors and the
patients. I submit that technology will make innovation easier
and make practice safer.
- Research will be easier with IT in place (easier to do chart review etc.).
So, I hope this makes the project easier to understand.
Biren
by: birensaraiya in: My entries
Modified on July 4, 2005 at 11:42 AM
Interesting model for our organizational management
Recently Steve had a post on Non Profit Organizations which prompted a response from Ken Thompson and his experience. The principles he outlines in bioteams are very interesting and can provide a good model for us in the future.
The describes the concepts of working in teams when all the members are not physically attached. He also describes some ground rules which will important for us as we move forward.
You know, it may make me sound like a geek, but actually enjoy the theoretical discussions and implementation of it. As I have said in the past, to the best of my knowledge the principles of collaboration with the use of technology is something that is new to the medical research field.
Biren
by: birensaraiya in: My entries
Modified on June 24, 2005 at 10:11 AM